Leeds Children’s Disability Register

Due to the Children's Act 1989, we must keep a register of children from birth to 18 years old, who live in Leeds and have a disability or special educational need (SEND).

How it works

The register is made up of a voluntary list of children and young people in Leeds, who have SEND and receive services from the health, education or voluntary organisations.

The register helps us and local health services to understand:

  • how many children and young people with special educational needs live in Leeds
  • the types of needs they have
  • how to plan and develop better services

Who is eligible

Children and young people are eligible if they:

  • are aged 0 to 18 years old (consent may need to be given for those aged between 16 and 18)
  • have a disability, special educational needs or a health condition that affects their daily lives
  • live in Leeds

How to join

To join the register, you will need to complete our online form.

Start online form

If you would like a paper copy to be posted or emailed out to you, contact us at CDR@leeds.gov.uk.

How do we keep your details safe?

We store your information securely under the terms of the General Data Protection Regulation (GDPR).

The information you give us is managed by the Child Health and Disability Service, Leeds Children’s Social Work and Leeds Children's Services. We’ll contact you once a year to make sure your information is up to date.

We will remove your child’s information:

  • when they reach 18 years old
  • if they move to an address outside of Leeds
  • if they are no longer classed as disabled or die

If you have any questions about information sharing please email CDR@leeds.gov.uk.