Support for adults with dementia


"People don’t know what dementia is, and it’s a bit scary at first… slowly I found I was becoming more confident and positive, learning coping strategies and picking up things.” Bob, living with dementia in Leeds.

Living with dementia is better if you can keep up with things you enjoy doing, even if it means asking others for a little understanding. It can also help to try new things and meet others who know what it’s like. See the documents section for our ‘living with Dementia in Leeds’ leaflet, and info about memory cafes and groups.

Dementia and forgetfulness

Dementia is caused by diseases which physically affect the brain, such as Alzheimers Disease. The early signs might include memory problems, getting lost in familiar places, or difficulties with words and communication.

It is normal to e.g. forget why we went upstairs, or to come back from shopping without the very thing we went for. However, if confusion or memory are causing significant problems with daily life and relationships, it is possible that it might be dementia, or another medical condition. The best next step is to make an appointment to see your GP.

Family and friends

Caring for someone with dementia can feel lonely and isolating. Leeds has a carer advice line, dementia carer support workers and carers’ support groups. To find out more, see the external links section.  

Advonet is a Leeds based organisation that can help a wide range of people with their advocacy needs. You can ask for an advocate by ringing them on 0113 244 0606. 

They operate as a single point of access for all advocacy services including the LIHCA service (Leeds Independent Health Complaints Advocacy).​ LIHCA can help if you feel you have not had the service you expect from the NHS and want to complain using the NHS complaints process. Full details are on ​Advonet's website.


External links


Contact us

If you have any questions after reading the information on this page, you can get in touch with us by email or by telephone on 0113 222 4401.​​​​



Dementia Friendly Leeds, Leeds Dementia Action AllianceDementia Friendly Leeds<div class="ExternalClass9188222E69F04AFAA6DD6C766F476475"><p>The Leeds Dementia Action Alliance brings together support groups, organisations and people in Leeds who want to work for a ‘dementia  friendly’ Leeds. It can make all the difference to know that a shop or a service is committed to understanding and helping.<br></p> <p>Please visit the Leeds Dementia Action Alliance – see the <strong>external links</strong> to see which local businesses and groups have signed up.<br></p> ​​​<span id="ms-rterangecursor-start" style="display:none;"></span><span id="ms-rterangecursor-end" style="display:none;"></span></div>
Dementia Friends, Become a Dementia FriendDementia Friends<div class="ExternalClass9BCD93998A2F4B8899B9E95BD1876048"><p>The Dementia Friends campaign helps people understand a little about dementia and its effects. You can watch a short video online or attend face-to-face information session. It is run by the Alzheimer’s Society and supported by Public Health England. This has proved very popular, and there are more than one million Dementia Friends across the country.<br></p> <p>To find out more and become a Dementia Friend see the link below.<br></p> ​​​​<span id="ms-rterangecursor-start" style="display:none;"></span><span id="ms-rterangecursor-end" style="display:none;"></span></div>
Local services, Memory drop-in sessionsLocal services<div class="ExternalClassC947AB473DB94137995D233B4144E22E"><p>​There are a number of different organisation offering services for people with dementia, some of them are listed here and you can find links to their websites in the<strong> external links section </strong>on this page. <br><br>The Alzheimers Society’s national website has a wealth of information about dementia.  <br><br><strong>The Leeds Directory</strong> is a searchable list of organisations that can help you live more independently. <br><br><strong>The Leeds Memory Service</strong> is accessed via your GP.  It provides specialist assessment, diagnosis, treatment and support for people experiencing memory problems.</p> <p><strong>Memory drop-in sessions </strong>at Leeds Central library for people with memory problems, people with dementia, their carers, or anyone who would like more information. Further information is available from the link below.<br><br><strong>The Leeds Dementia Peer Support Service </strong>runs activities and support groups (see the <strong>documents section </strong>on this page).  <br><br><strong>Carers Leeds</strong> runs groups for carers of someone with dementia. They can also offer support if you are worried about someone, or if the person with possible dementia is not acknowledging any problems. They have dementia carers support workers who can visit you at home, and based in the two main Leeds hospitals.<br><br>Assisted Living Leeds provides a range of equipment and technology that can help with personal safety and staying independent - see <a href="/residents/Pages/Equipment-for-your-home.aspx">equipment at home</a><br> <br><br><strong>The Leeds Telecare service </strong>provides a range of equipment and technology that can help with personal safety. In the <strong>Related pages </strong>section you'll find a page called <strong>Adpatations and equipment for your home</strong>. </p> <p><strong>West Yorkshire Fire and Rescue</strong> offer free home safety checks. <br><br><strong>Advocacy services </strong>can help with decision making and planning for the future, taking action to help you say what you want, secure your rights, represent your interests and obtain services you need. All advocacy services in Leeds can be contacted through <strong>Advonet,</strong> who will help choose the right service for you. <br><br><strong>Adult social care</strong> offers assessment and advice, which can lead to a range of services to help with personal care, day services or carers’ breaks (see the <strong>related pages section</strong>).<br><br><strong>The Leeds Centre for Integrated Living</strong> can help you plan and design your own support, either with your own funds, or an individual budget from Adult Social Care. <br><br><strong>Leeds and York Partnership NHS Trust</strong> run many services for people with dementia. ​</p> <p><strong>The Leeds Dementia Action Alliance</strong><br>The Leeds Dementia Action Alliance brings together support groups, organisations and people in Leeds who want to work for a "dementia-friendly" Leeds.  It can make all the difference to know that a shop or a service is committed to understanding and helping.<br><br>Please visit the Leeds Dementia Action Alliance (see External Links) to see which local businesses and groups have signed up.</p> <p>​ ​</p></div>



Peer support: Walking groups
Peer support - what is it? support - what is it.pdf445784pdf
Peer support: Our networks
Alzheimers Spring 2018 Newsletter Spring 2018 Newsletter.pdf424449pdf
Carers Groups in Leeds Groups in Leeds.pdf585075pdf
Peer support: Bob's story - Living with dementia.pdf162605pdf
Guideline: Behaviour in dementia guideline - Behavioural and Psychological Needs in Dementia.pdf1491509pdf
Strategy: Summary version well with Dementia in Leeds Exec Summary FINAL.pdf336140pdf
Leaflet: Living with dementia in Leeds
Memory Cafes in Leeds Cafes in Leeds.pdf1094677pdf
Peer support groups support groups.pdf472993pdf
Singing Groups in Leeds Groups in Leeds.pdf705287pdf

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